Surveillance and ICE Are Driving Patients Away From Medical Care, Report Warns

A new EPIC report says data brokers, ad-tech surveillance, and ICE enforcement are among the factors leading to a "health privacy crisis" that is eroding trust and deterring people from seeking care. When immigration agents enter hospitals and private companies are allowed to buy and sell data that reveals who seeks medical care, patients retreat, treatment is delayed, and health outcomes worsen, according to a new report that describes a growing "health privacy crisis" in the United States driven by surveillance and weak law enforcement limits. The report, published by the Electronic Privacy Information Center (EPIC), attributes the problem to outdated privacy laws and rapidly expanding digital systems that allow health-related information to be tracked, analyzed, breached, and accessed by both private companies and government agencies. EPIC, a Washington-based nonprofit focused on privacy and civil liberties, based its findings on a review of federal and state laws, court rulings, agency policies, technical research, and documented case studies examining how health data is collected, shared, and used across government and commercial systems. "Unregulated digital technologies, mass surveillance, and weak privacy laws have created a health privacy crisis," the report says.