Use of Patient Generated Data from Social Media and Collaborative Filtering for Preferences Elicitation in Shared Decision Making

With the increasing demand for personalization in clinical decision support system, one of the most challenging tasks is effective patient preferences elicitation. In the context of the MobiGuide project, within a medical application related to atrial fibrillation, a decision support system has been developed for both doctors and patients. In particular, we support shared decision-making, by integrating decision tree models with a dedicated tool for utility coefficients elicitation. In this paper we focus on the decision problem regarding the choice of anticoagulant therapy for low risk non-valvular atrial fibrillation patients. In addition to the traditional methods, such as time trade-off and standard gamble, an alternative way for preferences elicitation is proposed, exploiting patients’ self-reported data in health-related social media as the main source of information.