MND left her without a voice. After such a long time, I couldn't really remember my voice, Sarah Ezekiel tells BBC Access All. When I first heard it again, I felt like crying. The onset of motor neurone disease (MND) left Sarah without a voice and the use of her hands at the age of 34. It was within months of her becoming a mum for the second time.

In November 2017, Peter B Scott-Morgan received the news that almost nothing can prepare you for – he was told he had just two years to live. Peter had been diagnosed with motor neurone disease (MND). It kills a third of those who have it within a year, rising to a half by the end of year two, with no known cure. Devastated as Peter was, he'd already decided this was negotiable. Fortunately, long before his own diagnosis, he had been fascinated by the idea of harnessing the power of modern technology to prolong human life.